One Step Forward, Two Steps Back

Today began amazing... a big boy crib!! Jackson was transferred from the isolator to the crib at about noon. He did really well while we were there and things were great!

When I called around 7 pm after we'd left, the nurse said he was getting a little cold but there was a draft near his bed. She pulled his bed away from the wall and his temperature started to go back up.

When I talked to the night nurse around 9:30 she said that he was getting a little cold, but she covered him with a heavier blanket and his temp started to go back up.

When I talked to her at 1:30 am, she said that things were good, his temp was good, his breathing was better, so all things were getting better.

At 5:30 she told me that he started to have increased desats and his temp was getting colder so she put him back in the isolator. No more big boy crib. That's okay though because everyone has told me that it's normal to try him out of it, he's not ready, he goes back in the isolator, and then a few days later they try him again and he's ready. I'm okay leaving him in the isolator until his breathing gets better. We'll make it back to a big boy crib when he's bigger and ready. My baby just needs some more fat on him. :)

In other news, he's been requiring between 28-33 percent oxygen today. This afternoon, he would high-sat at 30, get turned down to 28-29, low sat, go back to 30, high sat at 30, and start the cycle all over again. I'm praying that his breathing gets better soon and he begins to turn the corner. We're still in the adjustment period for the high-flow and this is the hardest time. Once he gets the hang of it, he'll wean through the settings quickly. The initial adjustment is the hardest part for Jackson and so, of course, as a Mommy it's hard to watch.

Current stats:
Weight: 3 pounds 8 ounces (he lost a little weight tonight but that's okay. different nurse. different scale since he was in the crib not the isolator)

Respiratory: High Flow Nasal Cannula, 4, requiring 28-33 percent oxygen

Feedings: full feeds (26 cc every three hours)

Goals:
1. Decrease desats.
2. Require less than 30 percent oxygen.
3. Recover from the crib experiment. :)

Overall, it was a day where we experienced the NICU dance: one step forward, two steps back.

With love,
Anna